Physicians’ reported aspects and practices of SMA patients care (N=169).
| Aspects and practices | n (%) |
|---|---|
| Awareness of consensus statement for standard SMA care | |
| Yes | 84 (49.7) |
| No | 85 (50.3) |
| Awareness of the new treatment (Nusinersen) | |
| Not sure/undecided | 88 (52.1) |
| No | 23 (13.6) |
| Yes | 58 (34.3) |
| Will (Nusinersen) improve the SMA outcomes? | |
| Unsure/undecided | 90 (53.3) |
| No | 25 (14.8) |
| Yes | 54 (32) |
| Would you reverse code status of an end stage DNR SMA subject given the new potential medication? | |
| No | 42 (24.9) |
| Unsure/undecided/hesitate | 88 (52.1) |
| Yes | 39 (23.1) |
SMA - spinal muscular atrophy, DNR - do-not-resuscitate