- MS oatients’ attitudes towards prognosis forecasting tools (N=375).
| Variables | Number | Percent |
|---|---|---|
| “Do you want to be notified about the availability of this tool during your medical appointment if this tool is successfully created?” | ||
| Yes | 321 | 85.6 |
| No | 54 | 14.4 |
| “What is the timeline you prefer to avail the prognosis tool?” | ||
| At diagnosis | 306 | 81.60 |
| A few weeks or months after diagnosis | 52 | 13.87 |
| When you need to make a treatment decision | 115 | 30.67 |
| When you need to make a life decision | 103 | 27.47 |
| At other times | 9 | 2.40 |
| Never | 34 | 9.07 |
| “Learning your long-term prognosis by using this tool, which of the following setup would you agree?” | ||
| I use the software myself, on my own | 131 | 34.9 |
| Use the software myself, accompanied by a significant other) | 98 | 26.1 |
| With a neurologist, unaccompanied by a significant other | 159 | 42.4 |
| With a neurologist and accompanied by a significant other | 116 | 30.9 |
| With an MS specialist nurse, unaccompanied by a significant other | 51 | 13.6 |
| With an MS specialist nurse and accompanied by a significant other | 44 | 11.3 |
| Never | 34 | 9.1 |
| “The following long-term prognosis can be measured by the tool. At the moment, which of these you most want to know?” | ||
| Whether / when you will need a stick | 167 | 44.5 |
| Whether / when you will need a wheelchair | 187 | 49.9 |
| Whether / when your MS will convert to the secondary progressive | 259 | 69.1 |
| Life expectancy | 181 | 48.3 |
| “Should we announce publicly the availability of the tool, such as on the web?” | ||
| 1=Yes | 156 | 41.6 |
| 0=No | 85 | 22.7 |
| 2=Not sure | 134 | 35.7 |