Quality of life and measures of quality of life in patients with neuromuscular disorders

TM Burns, CD Graham, MR Rose, Z Simmons - Muscle & nerve, 2012 - Wiley Online Library
In this review we present an overview of quality of life (QOL) and QOL measures in
neuromuscular disorders. We discuss the characteristics of QOL measures used in …

A systematic review of quality of life in adults with muscle disease

CD Graham, MR Rose, EA Grunfeld, SD Kyle… - Journal of …, 2011 - Springer
We reviewed the literature on how muscle disease affects quality of life compared to healthy
controls, and the factors that influence the effects of muscle disease on quality of life. We …

A randomised controlled trial of acceptance and commitment therapy for improving quality of life in people with muscle diseases

M Rose, CD Graham, N O'Connell, C Vari… - Psychological …, 2023 - cambridge.org
AbstractBackground Chronic muscle diseases (MD) are progressive and cause wasting and
weakness in muscles and are associated with reduced quality of life (QoL). The ACTMuS …

Factors associated with health-related quality of life in children with Duchenne muscular dystrophy

Y Wei, KN Speechley, G Zou… - Journal of child …, 2016 - journals.sagepub.com
This study investigated clinical and family characteristics associated with health-related
quality of life in children with Duchenne muscular dystrophy. Families of 176 boys with …

The lived experience of facioscapulohumeral muscular dystrophy: A systematic review and synthesis of the qualitative literature

R Murray, CM Donnelly, KD Drescher… - Muscle & …, 2024 - Wiley Online Library
Introduction In this review we sought to characterize the lived experience of people living
with FSHD (pwFSHD) to help clinicians to orient their services to the needs of these …

PSIHOMETRIČNE LASTNOSTI SLOVENSKEGA PREVODA VPRAŠALNIKA O KAKOVOSTI ŽIVLJENJA PRI BOLNIKIH Z GENETSKO OBLIKO ŽIVČNO-MIŠIČNIH …

N Lajlar, M Moharić, G Vidmar - Rehabilitation/Rehabilitacija, 2021 - search.ebscohost.com
Metode: V slovenščino smo prevedli vprašalnik ter preverili njegovo zanesljivost in
veljavnost. Funkcijsko stanje bolnikov smo ocenili z Lestvico funkcijske neodvisnosti …

[BOOK][B] Quality of Life and Health-Related Quality of Life in Children with Duchenne Muscular Dystrophy

Y Wei - 2014 - search.proquest.com
Quality of life studies in Duchenne Muscular Dystrophy are scarce. This study explores the
relationship between the broad concept of quality of life and the more focused concept of …

BODY COMPOSITION AND ITS RELATIONSHIP WITH MOTOR PERFORMANCE IN NEUROMUSCULAR DISEASES

ME Yaşa, SA Yıldırım - Fizyoterapi Rehabilitasyon, 2018 - dergipark.org.tr
p. p1 {margin: 0.0 px 0.0 px 0.0 px 0.0 px; font: 26.0 px'Helvetica Neue'} Purpose: Increased
fat mass and decreased muscle mass affect patient's motor performance during slowly …

ERİŞKİN NÖROMUSKÜLER HASTALIKLARDA FONKSİYONEL DÜZEY İLE ANKSİYETE, DEPRESYON VE YAŞAM KALİTESİ ARASINDAKİ İLİŞKİ

SA Yıldırım, ÖT Yılmaz, S Özer - Ufkun Ötesi Bilim Dergisi, 2008 - dergipark.org.tr
Nöromusküler hastalıklarda (NMH) çok yönlü birçok problemin bir arada bulunması
nedeniyle hastaların tedavi ve bakım süreçleri konusunda zorluklar yaşanmaktadır. Kronik …