OBJECTIVE: To evaluate the health related quality of life (HRQoL) of totally independent
ambulatory neuromuscular disease (NMD) patients in comparison with age matched healthy …

OBJECTIVE: To compare health-related quality of life (HRQoL) and psychosocial features in
rapidly progressive neuromuscular disorders (RPNMD) and slowly progressive …

Purpose To build a questionnaire to assess health-related quality of life (HRQL) in patients
suffering from slowly progressive neuromuscular disease (NMD) using item response theory …

Objective Neuromuscular diseases (NMD) are frequently characterized by a progressive
clinical course leading to disability, which has an impact also on the quality of life. To date …

Purpose: This study was designed to analyze the activities of daily living of patients with
neuromuscular disease (NMD) and to investigate the effect of occupational therapy …

Purpose: A qualitative work is conducted to enable later the construction of a health-related
quality of life (HRQL) questionnaire for patients with slowly-progressive neuromuscular …

Neuromuscular diseases (NMD) cover a broad spectrum of different rare diagnoses in which
the primary lesion is in the peripheral nervous system. The impairment caused by an NMD …

Background: Free-living or habitual physical activity (HPA) refers to someone's performance
in his or her free-living environment. Neuromuscular disorders (NMD) manifest through HPA …

Purpose: People with neuromuscular disease experience lower quality of life levels than
people from the general population. We examined the prevalence and severity of a broad …

This cross-sectional study assessed health-related quality of life (HRQOL) in ambulant and
nonambulant patients with Duchenne muscular dystrophy, and explored the association …