Review on myelomeningocele management and its current status in Saudi Arabia

References

1. ↵
   1. Ware AL,
   2. Kulesz PA,
   3. Juranek J,
   4. Cirino PT,
   5. Fletcher JM

   (2017) Cognitive control and associated neural correlates in adults with spina bifida myelomeningocele. Neuropsychology 31, 411–423.
2. ↵
   1. Werhagen L,
   2. Gabrielsson H,
   3. Westgren N,
   4. Borg K

   (2013) Medical complication in adults with spina bifida. Clin Neurol Neurosurg 115, 1226–1229.
3. ↵
   1. Seidahmed MZ,
   2. Abdelbasit OB,
   3. Shaheed MM,
   4. Alhussein KA,
   5. Miqdad AM,
   6. Khalil MI,
   7. et al.

   (2014) Epidemiology of neural tube defects. Saudi Med J 35, S29–S35.
4. ↵
   1. Magbool G,
   2. Al Mulhim I,
   3. Uduman SA,
   4. Al Umran K

   (1989) Congenital Anomalies in liveborn Saudi infants. Emirates Med J 7, 7–10.
5. ↵
   1. El-Awad Mel-H,
   2. Sivasankaran S

   (1992) Neural tube defects in Southwestern region of Saudi Arabia. Ann Saudi Med 12, 449–452.
6. ↵
   1. Asindi A,
   2. Al-Shehri A

   (2001) Neural tube defects in the Asir Region of Saudi Arabia. Ann Saudi Med 21, 26–29.
7. ↵
   1. Safdar OY,
   2. Al-Dabbagh AA,
   3. Abuelieneen WA,
   4. Kari JA

   (2007) Decline in the incidence of neural tube defects after the national fortification of flour (1997-2005). Saudi Med J 28, 1227–1229.
8. ↵
   1. AlShail E,
   2. De Vol E,
   3. Yassen A,
   4. Elgamal EA

   (2014) Epidemiology of neural tube defects in Saudi Arabia. Saudi Med J 35, S68, S71.
9. ↵
   1. Greene ND,
   2. Copp AJ

   (2014) Neural tube defects. Annu Rev Neurosci 37, 221–242.
10. ↵
    1. Al Rakaf MS,
    2. Kurdi AM,
    3. Ammari AN,
    4. Al Hashem AM,
    5. Shoukri MM,
    6. Garne E,
    7. et al.

    (2015) Patterns of folic acid use in pregnant Saudi women and prevalence of neural tube defects - Results from a nested case-control study. Prev Med Rep 2, 572–576.
11. ↵
    1. Al-Akhfash AA,
    2. Abdulla AM,
    3. Osman AM,
    4. Abdulgafar JI,
    5. Almesned AA

    (2013) Maternal knowledge and use of folic acid among Saudi females. Saudi Med J 34, 1173–1178.
12. ↵
    1. Salih MA,
    2. Murshid WR,
    3. Mohamed AG,
    4. Ignacio LC,
    5. de Jesus JE,
    6. Baabbad R,
    7. et al.

    (2014) Risk factors for neural tube defects in Riyadh City, Saudi Arabia:Case-control study. Sudan J Paediatr 14, 49–60.
13. ↵
    1. Arth A,
    2. Kancherla V1,
    3. Pachón H,
    4. Zimmerman S,
    5. Johnson Q,
    6. Oakley GP Jr.

    (2016) A 2015 global update on folic acid-preventable spina bifida and anencephaly. Birth Defects Res A Clin Mol Teratol 106, 520–529.
14. ↵
    1. Lo A,
    2. Polšek D,
    3. Sidhu S

    (2014) Estimating the burden of neural tube defects in low- and middle-income countries. J Glob Health 4, 010402.
15. ↵
    1. Salih MA

    (2014) Neural tube defects Challenging, yet preventable. Saudi Med J 35, S3–S4.
16. ↵
    1. Rofail D,
    2. Maguire L,
    3. Kissner M,
    4. Colligs A,
    5. Abetz-Webb L

    (2013) A review of the social, psychological, and economic burdens experienced by people with spina bifida and their caregivers. Neurol Ther 2, 1–12.
17. ↵
    1. Grosse SD,
    2. Berry RJ,
    3. Mick Tilford J,
    4. Kucik JE,
    5. Waitzman NJ

    (2016) Retrospective Assessment of Cost Savings From Prevention:Folic Acid Fortification and Spina Bifida in the U.S. Am J Prev Med 50, S74–S80.
18. ↵
    1. Kumar J,
    2. Afsal M,
    3. Garg A

    (2017) Imaging spectrum of spinal dysraphism on magnetic resonance:A pictorial review. World J Radiol 9, 178–190.
19. ↵
    1. Shapiro GK

    (2014) Abortion law in Muslim-majority countries:an overview of the Islamic discourse with policy implications. Health Policy Plan 29, 483–494.
20. ↵
    1. Al-Matary A,
    2. Ali J

    (2014) Controversies and considerations regarding the termination of pregnancy for foetal anomalies in Islam. BMC Med Ethics 15, 10.
21. ↵
    1. Adzick NS

    (2013) Fetal surgery for spina bifida:past, present, future. Semin Pediatr Surg 22, 10–17.
22. ↵
    1. Heuer GG,
    2. Adzick NS,
    3. Sutton LN

    (2015) Fetal myelomeningocele closure:technical considerations. Fetal Diagn Ther 37, 166–171.
23. ↵
    1. Antiel RM,
    2. Collura CA,
    3. Flake AW,
    4. Johnson MP,
    5. Rintoul NE,
    6. Lantos JD,
    7. et al.

    (2017) Physician views regarding the benefits and burdens of prenatal surgery for myelomeningocele. J Perinatol 37, 994–998.
24. ↵
    1. Antiel RM

    (2016) Ethical challenges in the new world of maternal-fetal surgery. Semin Perinatol 40, 227–233.
25. ↵
    1. Antiel RM,
    2. Adzick NS,
    3. Thom EA,
    4. Burrows PK,
    5. Farmer DL,
    6. Brock JW 3rd.,
    7. et al.

    (2016) Impact on family and parental stress of prenatal vs postnatal repair of myelomeningocele. Am J Obstet Gynecol 215, 522, e1–ne6.
26. ↵
    1. Brown SD,
    2. Feudtner C,
    3. Truog RD

    (2015) Prenatal Decision-Making for Myelomeningocele:Can We Minimize Bias and Variability? Pediatrics 136, 409–411.
27. ↵
    1. Kulkarni AV,
    2. Drake JM,
    3. Kestle JR,
    4. Mallucci CL,
    5. Sgouros S,
    6. Constantini S

    (2010) Predicting who will benefit from endoscopic third ventriculostomy compared with shunt insertion in childhood hydrocephalus using the ETV Success Score. J Neurosurg Pediatr 6, 310–315.
28. ↵
    1. Elbabaa SK,
    2. Gildehaus AM,
    3. Pierson MJ,
    4. Albers JA,
    5. Vlastos EJ

    (2017) First 60 fetal in-utero myelomeningocele repairs at Saint Louis Fetal Care Institute in the post-MOMS trial era:hydrocephalus treatment outcomes (endoscopic third ventriculostomy versus ventriculo-peritoneal shunt). Childs Nerv Syst 33, 1157–1168.
29. ↵
    1. Jackson EM,
    2. Schwartz DM,
    3. Sestokas AK,
    4. Zarnow DM,
    5. Adzick NS,
    6. Johnson MP,
    7. et al.

    (2014) Intraoperative neurophysiological monitoring in patients undergoing tethered cord surgery after fetal myelomeningocele repair. J Neurosurg Pediatr 13, 355–361.
30. ↵
    1. Johnson MP,
    2. Bennett KA,
    3. Rand L,
    4. Burrows PK,
    5. Thom EA,
    6. Howell LJ,
    7. et al.

    (2016) The Management of Myelomeningocele Study:obstetrical outcomes and risk factors for obstetrical complications following prenatal surgery. Am J Obstet Gynecol 215, 778.e1–778.e9.
31. ↵
    1. Wataganara T,
    2. Seshadri S,
    3. Leung TY,
    4. Matter C,
    5. Ngerncham M,
    6. Triyasunant N,
    7. et al.

    (2017) Establishing Prenatal Surgery for Myelomeningocele in Asia:The Singapore Consensus. Fetal Diagn Ther 41, 161–178.
32. 1. Zuccaro G

    (2017) Why fetal neurosurgery? Childs Nerv Syst 33, 1081–1082.
33. ↵
    1. Van Calenbergh F,
    2. Joyeux L,
    3. Deprest J

    (2017) Maternal-fetal surgery for myelomeningocele:some thoughts on ethical, legal, and psychological issues in a Western European situation. Childs Nerv Syst 33, 1247–1252.
34. ↵
    1. McLone DG

    (1998) Care of the neonate with a myelomeningocele. Neurosurg Clin N Am 9, 111–120.
35. ↵
    1. Epstein NE,
    2. Rosenthal AD,
    3. Zito J,
    4. Osipoff M

    (1985) Shunt placement and myelomeningocele repair:simultaneous vs sequential shunting Review of 12 cases. Childs Nerv Syst 1, 145–147.
36. ↵
    1. Parent AD,
    2. McMillan T

    (1995) Contemporaneous shunting with repair of myelomeningocele. Pediatr Neurosurg 22, 132–135, discussion 136.
37. ↵
    1. Machado HR,
    2. Santos de,
    3. Oliveira R

    (2004) Simultaneous repair of myelomeningocele and shunt insertion. Childs Nerv Syst 20, 107–109.
38. ↵
    1. Radmanesh F,
    2. Nejat F,
    3. El Khashab M,
    4. Ghodsi SM,
    5. Ardebili HE

    (2009) Shunt complications in children with myelomeningocele:effect of timing of shunt placement. J Neurosurg Pediatr 3, 516–520.
39. 1. Tuli S,
    2. Drake J,
    3. Lamberti-Pasculli M

    (2003) Long-term outcome of hydrocephalus management in myelomeningoceles. Childs Nerv Syst 19, 286–291.
40. 1. Teo C,
    2. Jones R

    (1996) Management of hydrocephalus by endoscopic third ventriculostomy in patients with myelomeningocele. Pediatr Neurosurg 25, 57–63, discussion 63.
41. ↵
    1. Warf BC,
    2. Campbell JW

    (2008) Combined endoscopic third ventriculostomy and choroid plexus cauterization as primary treatment of hydrocephalus for infants with myelomeningocele:long-term results of a prospective intent-to-treat study in 115 East African infants. J Neurosurg Pediatr 2, 310–316.
42. ↵
    1. Jimenez-Gomez A,
    2. Castillo H,
    3. Burckart C,
    4. Castillo J

    (2017) Endoscopic Third Ventriculostomy to address hydrocephalus in Africa:A call for education and community-based rehabilitation. J Pediatr Rehabil Med 10, 267–273.
43. ↵
    1. Santos MM,
    2. Rubagumya DK,
    3. Dominic I,
    4. Brighton A,
    5. Colombe S,
    6. O'Donnell P,
    7. et al.

    (2017) Infant hydrocephalus in sub-Saharan Africa:the reality on the Tanzanian side of the lake. J Neurosurg Pediatr 20, 423–431.
44. ↵
    1. Mnguni MN,
    2. Enicker B,
    3. Madiba TE

    (2017) Management of Myelomeningocele in the province of Kwazulu-Natal, South Africa. S Afr J Surg 55, 73.
45. ↵
    1. Rei J,
    2. Pereira J,
    3. Reis C,
    4. Salvador S,
    5. Vaz R

    (2017) Endoscopic Third Ventriculostomy for the Treatment of Hydrocephalus in a Pediatric Population with Myelomeningocele. World Neurosurg 105, 163–169.
46. ↵
    1. Chakraborty A,
    2. Crimmins D,
    3. Hayward R,
    4. Thompson D

    (2008) Toward reducing shunt placement rates in patients with myelomeningocele. J Neurosurg Pediatr 1, 361–365.
47. ↵
    1. Tamburrini G,
    2. Frassanito P,
    3. Iakovaki K,
    4. Pignotti F,
    5. Rendeli C,
    6. Murolo D,
    7. et al.

    (2013) Myelomeningocele:the management of the associated hydrocephalus. Childs Nerv Syst 29, 1569–1579.
48. ↵
    1. Strömfors L,
    2. Wilhelmsson S,
    3. Falk L,
    4. Höst GE

    (2017) Experiences among children and adolescents of living with spina bifida and their visions of the future. Disabil Rehabil 39, 261–271.
49. ↵
    1. Brustrom J,
    2. Thibadeau J,
    3. John L,
    4. Liesmann J,
    5. Rose S

    (2012) Care coordination in the spina bifida clinic setting:current practice and future directions. J Pediatr Health Care 26, 16–26.
50. ↵
    1. Dicianno BE,
    2. Kurowski BG,
    3. Yang JM,
    4. Chancellor MB,
    5. Bejjani GK,
    6. Fairman AD,
    7. et al.

    (2008) Rehabilitation and medical management of the adult with spina bifida. Am J Phys Med Rehabil 87, 1027–1050.
51. ↵
    1. Fieggen G,
    2. Fieggen K,
    3. Stewart C,
    4. Padayachy L,
    5. Lazarus J,
    6. Donald K,
    7. et al.

    (2014) Spina bifida:a multidisciplinary perspective on a many-faceted condition. S Afr Med J 104, 213–217.
52. 1. Kaufman BA,
    2. Terbrock A,
    3. Winters N,
    4. Ito J,
    5. Klosterman A,
    6. Park TS

    (1994) Disbanding a multidisciplinary clinic:effects on the health care of myelomeningocele patients. Pediatr Neurosurg 21, 36–44.
53. 1. Kinsman SL,
    2. Levey E,
    3. Ruffing V,
    4. Stone J,
    5. Warren L

    (2000) Beyond multidisciplinary care:a new conceptual model for spina bifida services. Eur J Pediatr Surg 10, 35–38.
54. 1. Houtrow A,
    2. Dicianno BE

    (2014) Advances in spina bifida care:from the womb to adulthood. Current Physical Medicine and Rehabilitation Reports 2, 71–78.
55. 1. De Coppi P

    (2013) Regenerative medicine for congenital malformation:new opportunities for therapy. Verduci International LLC 1, e379.