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Research ArticleOriginal Article
Open Access

Quality of life of caregivers of autistic children in Saudi Arabia: Cross-sectional study

Basma A. Al-Jabri, Refal M. Abualhamael, Maryam T. Al Hazza, Salwa A. Bahabri, Yara M. Alamri and Bayan M. Alghamdi
Neurosciences Journal July 2022, 27 (3) 150-155; DOI: https://doi.org/10.17712/nsj.2022.3.20210141
Basma A. Al-Jabri
From the Department of Pediatrics (Al-Jabri), King Abdulaziz University Hospital, and from the Faculty of Medicine (Abualhamael, Al Hazza, Bahabri, Alamri, Alghamdi), King Abdulaziz University, Jeddah, Kingdom of Saudi Arabia.
MBBS, SB-Ped, AB-Ped
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  • For correspondence: [email protected]
Refal M. Abualhamael
From the Department of Pediatrics (Al-Jabri), King Abdulaziz University Hospital, and from the Faculty of Medicine (Abualhamael, Al Hazza, Bahabri, Alamri, Alghamdi), King Abdulaziz University, Jeddah, Kingdom of Saudi Arabia.
MBBS
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Maryam T. Al Hazza
From the Department of Pediatrics (Al-Jabri), King Abdulaziz University Hospital, and from the Faculty of Medicine (Abualhamael, Al Hazza, Bahabri, Alamri, Alghamdi), King Abdulaziz University, Jeddah, Kingdom of Saudi Arabia.
MBBS
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Salwa A. Bahabri
From the Department of Pediatrics (Al-Jabri), King Abdulaziz University Hospital, and from the Faculty of Medicine (Abualhamael, Al Hazza, Bahabri, Alamri, Alghamdi), King Abdulaziz University, Jeddah, Kingdom of Saudi Arabia.
MBBS
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Yara M. Alamri
From the Department of Pediatrics (Al-Jabri), King Abdulaziz University Hospital, and from the Faculty of Medicine (Abualhamael, Al Hazza, Bahabri, Alamri, Alghamdi), King Abdulaziz University, Jeddah, Kingdom of Saudi Arabia.
MBBS
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Bayan M. Alghamdi
From the Department of Pediatrics (Al-Jabri), King Abdulaziz University Hospital, and from the Faculty of Medicine (Abualhamael, Al Hazza, Bahabri, Alamri, Alghamdi), King Abdulaziz University, Jeddah, Kingdom of Saudi Arabia.
MBBS
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  • Article
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Article Figures & Data

Figures

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  • Figure 1
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    Figure 1

    - Caregiver’s feedback on the provided medical services. Yes - caregiver of child with ASD, No - caregiver of child without ASD

Tables

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    • View popup
    Table 1

    - Demographics of the caregivers in this study.

    DemographicsParticipants (n)
    Caregiver of child with ASDCaregiver of child without ASD
    Gender
    Male14093
    Female266313
    Age
    <202321
    20-3084128
    31-40177118
    41-5085110
    >503729
    Academic level
    Primary school1510
    Middle school3516
    High school9571
    Bachelors221276
    Masters3029
    PhD104
    Nationality
    Saudi Arabian377397
    Non-Saudi Arabian299
    Province
    Riyadh4532
    Makkah6549
    Madinah AlMonawarah113
    Al-Qassim2434
    Eastern province4250
    Aseer611
    Tabouk4337
    Hail4651
    Northern borders68
    Jazan1214
    Najran4628
    Al-Bahaa3081
    Al-Jouf308
    Relation to child with ASD
    Mother230 
    Father88 
    Sister34 
    Brother34 
    Other relatives12 
    Special education teacher/Specialist8 
    Number of ASD children
    1320 
    260 
    312 
    More than 314 

    ASD: autism spectrum disorder

      • View popup
      Table 2

      - Domains of quality of life and caregiving status.

      DomainsCaregiver of child with ASD Caregiver of child without ASDP-value
      Mean±SD
      Physical functioning77.9±24.982.0±21.90.012
      Role limitations due to physical health62.1±39.271.5±36.60.000
      Role limitations due to emotional problems56.9±43.764.6±42.10.011
      Energy/fatigue48.4±18.852.3±18.40.003
      Emotional well-Being55.8±18.758.6±17.60.025
      Social functioning62.4±25.572.2±21.20.000
      General health55.9±13.761.8±12.90.000
      Health change60.1±22.561.3±24.70.418
      • View popup
      Table 3

      - P-values of caregiver quality of life, age, and relation to child with ASD.

      DomainsQOL and ageQOL and relation to the ASD child
      Physical function0.0000.006
      Role limitations due to physical Health0.0030.001
      Role limitations due to emotional problem0.0020.010
      Energy/fatigue0.1580.000
      Emotional well-being0.9370.014
      Social functioning0.0270.014
      Pain0.0000.004
      General health0.0000.019
      Health change0.0010.202

      Values are presented as p-value. ASD - autism spectrum disorder, QOL - quality of life

        • View popup
        Table 4

        - Quality-of-life domain scores according to province.

        ProvinceD1D2D3D4D5D6D7D8D9
        Mean (SD)
        Riyadh85.78 ±19.0166.67 ±41.6354.07±47.3048.44 ±20.4758.13±17.9666.11±28.5373.56 ±25.7656.56 ±12.78)62.22 ±24.78)
        Al-Qassim81.88 ±18.2384.38±26.2969.44 ±40.4357.50 ±16.6270.50±14.5876.56±18.1881.98 ±19.5967.29 ±14.5259.38 ±16.17
        Makkah83.08 ±18.8360.39 ±41.2056.41 ±44.8546.15 ±22.5156.49±23.3861.73±29.3967.04 ±27.4957.15 ±15.1056.15 ±26.53
        Madinah81.82 ±18.0738.64 ±40.8739.39 ±44.2744.09 ±20.3554.18±21.5769.32 ±27.0272.27 ±20.9652.73 ±20.7854.55 ±29.19
        Northern Borders73.33 ±18.3554.17 ±45.8777.78 ±40.3741.67 ±16.6348.00 ±16.7866.67 ±30.2872.08 ±21.4146.67 ±14.3854.17 ±10.21
        Tabouk83.61 ±19.6580.81 ±29.3082.95 ±30.3148.26 ±7.4751.72 ±7.5375.29 ±25.2284.59 ±20.4254.07 ±8.9556.40 ±11.04
        Al-Jowf71.83 ±36.0750.00 ±50.8653.33 ±50.7457.17 ±21.9961.47 ±22.2762.92 ±23.0973.17 ±23.0556.67 ±12.1371.67 ±22.49
        Hael62.61±33.8462.50 ±27.2642.75 ±38.2743.91 ±13.0855.57 ±13.0447.28 ±12.8855.49 ±18.5447.50 ±11.9158.15 ±14.96
        Aseer87.50 ±19.9462.50 ±41.0855.56 ±50.1949.17 ±17.1549.33 ±23.9666.67 ±24.5871.67 ±18.0160.83 ±18.5554.17 ±29.23
        Jazan71.67 ±23.5831.25 ±42.8147.22 ±43.7152.50 ±19.8354.67 ±17.3456.25 ±21.6566.46 ±23.5458.33 ±11.7462.50 ±25.00
        Najran68.37 ±26.4855.98 ±37.3453.62 ±40.6646.96 ±16.0753.57 ±14.4554.62 ±24.3570.44 ±24.8255.11 ±14.5963.59 ±22.18
        Al-Baha81.83 ±19.8057.50 ±37.2355.56 ±42.2952.17 ±21.1258.13 ±20.3970.83 ±19.5171.00 ±23.8958.33 ±10.0370.00±24.03
        Eastern province82.02±20.7561.91±39.5254.76 ±47.0445.24 ±21.69547.52 ±21.0255.66 ±25.6368.63 ±24.8657.38 ±13.0853.57 ±25.04
        P-value0.0000.0000.0080.0600.0010.0000.0000.0000.019

        D1 - physical function, D2 - role limitations due to physical health, D3 - role limitations due to emotional problems, D4 - energy/fatigue, D5 - emotional well-being, D6 - social function, D7 - pain, D8 - general health, D9 - health change

          • View popup
          Table 5

          - Quality-of-life domain scores and caregiver feedback on medical services.

          Feedback on medical servicesD1D2D3D4D5D6D7D8D9
          Excellent81.0564.7456.1453.4262.3163.1674.2159.4755.26
          Good84.4672.9777.4855.1361.6272.6379.1263.6565.54
          Needs Improvement80.2754.5452.7345.8255.3461.1463.4156.8256.82
          Poor77.6944.2325.6434.6144.9246.1556.3550.0053.85
          Totally Unsatisfying82.3242.8629.7645.1853.1448.2164.7353.2144.64
          P value0.8040.0270.0000.0130.0650.0010.0050.0110.014

          values are presented as mean

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          Quality of life of caregivers of autistic children in Saudi Arabia: Cross-sectional study
          Basma A. Al-Jabri, Refal M. Abualhamael, Maryam T. Al Hazza, Salwa A. Bahabri, Yara M. Alamri, Bayan M. Alghamdi
          Neurosciences Journal Jul 2022, 27 (3) 150-155; DOI: 10.17712/nsj.2022.3.20210141

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          Quality of life of caregivers of autistic children in Saudi Arabia: Cross-sectional study
          Basma A. Al-Jabri, Refal M. Abualhamael, Maryam T. Al Hazza, Salwa A. Bahabri, Yara M. Alamri, Bayan M. Alghamdi
          Neurosciences Journal Jul 2022, 27 (3) 150-155; DOI: 10.17712/nsj.2022.3.20210141
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