Article Figures & Data
Tables
Demographics Autism GDD n (%) n (%) Age of parents Father 20-29 5 (1.8) 6 (2.3) 30-39 113 (41.2) 108 (42) 40-49 121 (44.2) 117 (45.5) ≥50 30 (10.9) 22 (8.6) Deceased 5 (1.8) 4 (1.6) Mother 20-29 34 (12.4) 47 (18.3) 30-39 160 (58.4) 144 (56) 40-49 75 (27.4) 59 (23) ≥50 4 (1.5) 5 (1.9) Deceased 1 (0.4) 2 (0.8) Level of education Less than high school Father 43 (15.8) 65 (25.3) Mother 29 (10.6) 42(16.3) High school or above Father 231 (84.3) 192 (74.7) Mother 245 (89.4) 215 (83.7) Monthly family income 100-300 JD 51 (18.8) 81 (31.5) 301-500 JD 157 (57.29) 130 (50.6) > 500 JD 66 (24.3) 46 (17.9) ASD -Autism spectrum disorder, GDD - global developmental delay Overview of services Autism GDD P-values n (%) Total number of children included in the study 274 257 Average age at first session for those who attended 3.9 3.7 0.798 Total number of centres tried by parents Average 1.65 1.65 0.729 Range (1-6) (1-10) Type of services received Physiotherapy 18 (6.6) 103 (40.1) 0.000 Speech therapy 177 (64.6) 87 (33.9) 0.000 Occupational therapy 37 (13.5) 59 (23) 0.005 Communication/behavioral therapy 182 (66.4) 61 (23.7) 0.000 Degree of parental satisfaction: satisfied or very satisfied Physiotherapy 11 (61.1) 62 (60.2) 0.000 Speech therapy 87 (49.1) 55 (63.2) 0.000 Occupational therapy 20 (54) 36 (61.0) 0.089 Communication /behavioral therapy 97 (53.2) 40 (65.6) 0.000 Parent believes their child may go to school if they attend rehabilitation services Yes 103 (37.6) 104 (40.5) 0.041 No 158 (57.7) 141 (54.9) Don’t know 13 (4.7) 12 (4.7) Barriers to services Cost 138 (58) 172 (72) 0.001 Distance /transportation 88 (37.5) 110 (46) 0.045 Not helpful 75 (31.5) 51 (21.3) 0.012 Parents are trained to provide services 7 (2.9) 10 (4.2) 0.464 Preferred location of services Home 37 (13.5) 48 (18.8) 0.10 Specialized center 198 (72.3) 181 (70.7) 0.691 Online courses 1 (0.4) 3 (1.2) 0.283 Hospital 14 (5.1) 11 (4.3) 0.659 Receive training to provide services themselves 21 (7.7) 30 (11.7) 0.114 Details of services Physiotherapy Occupational therapy Speech therapy Behavioral therapy Number of children receiving service 18 (6.6) 37 (13.5) 177 (64.6) 182 (66.4) Age at first session Average 3.8 3.7 4.0 4.0 Range (0.25-9) (1.25-9) (1.25-9) (1.25-9) Average weekly hours 3.6 3.1 6.25 6.64 Type of treatment center Public autism center 0 0 2 (1.1) 1 (0.5) Public developmental delay center 4 (22.2) 1 (2.7) 6 (3.4) 2 (1.1) Private autism center 8 (44.2) 18 (48.6) 65 (36.7) 67 (36.8) Private developmental delay center 4 (22.2) 13 (35.1) 81 (45.8) 86 (47.3) Home 2 (11.1) 4 (10.8) 8 (4.5) 10 (5.5) School 0 1 (2.7) 10 (5.6) 11 (6) Other 0 0 5 (2.8) 5 (2.7) Average monthly cost Jordanian dinar 99.50 113.50 107 113.74 (US dollar) (140.3) (160) (151) (160.4) Distance from home to center in minutes < 15 min 4 (22.2) 12 (32.4) 33 (18.7) 34 (18.9) 15-30 min 9 (50) 19 (51.4) 100 (56.4) 103 (56.5) 30-60 min 4 (22.2) 6 (16.2) 34 (19.3) 35 (19.4) > 60 min 1 (5.6) 0 10 (5.7) 10 (5.6) Degree of parental satisfaction: satisfied or very satisfied 11 (61.1) 20 (54) 87 (49.1) 97 (53.2)